DC HRP: District of Columbia's Health Resource Partnership

Virtual Library A - Z Index: A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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For Consumers & Families

image of friends hugging

For users needing additional assistance: Listen to important information on this pageWelcome to the Health Resources Partnership.

Our goal is to help people in Washington D.C. with intellectual and other developmental disabilities with their health and mental health care.

Our plan is to do this by helping the helpers –

we will help the providers who are already giving health and mental health care services
and
get new providers involved, too.

Search our Provider Database to find a professional close to you!


Caregiver Support and Resources

Community Participation

Exercise and Fitness

Health Care Reform

Improving Health and Wellness

Getting the Supports You Need

Information on Conditions

bullet Caregiver Supports and Resources

Caregiver Resources

Ask Medicare has a new set of resources for caregivers. This web site has a video of one family’s story, and highlights programs and resources improve a caregiver’s well-being. It also has a links to services available for caregivers and care recipients through the HHS Administration on Aging, HHS Centers for Medicare & Medicaid Services and other state and local programs. For more information visit the site at www.medicare.gov/caregivers

Metro Access

NEW MetroAccess Application

The Metro Office of Eligibility Certification has updated the MetroAccess application form for people with disabilities who are applying for paratransit service. Information about eligibility for paratransit and the Reduced Fare Program for People with Disabilities can be found on the Metro website at the following link: http://www.wmata.com/accessibility/metroaccess_eligibility.cfm

Application Form (PDF) Click here
Application Form (Word) Click here
For additional information, please e-mail questions to eligibility@wmata.com

bullet Community Participation


What's on City DC is a calendar of events in the District of Columbia that is a useful tool for planning community integration activities, promoting wellness in individuals with disabilities as well as encouraging independence. The calendar includes everything from theatre performances, movies, concerts and other featured programming. Each calendar date includes the accessibility options and other details regarding the event.

bullet Exercise and Fitness

Special Features: Fitness, for Individuals with Disabilities

bullet Health Care Reform


Health Care Reform and Individuals with Disabilities

A health care reform law called the Patient Protection and Affordable Care Act (P.L. 111-148) was signed by President Obama March 23, 2010. To understand how it will affect individuals with intellectual and other developmental disabilities and their families, read the information on the following websites

NEW
HealthCare.gov
is the new website about the Affordable Care Act that became law in October 2010.

Association of University Centers on Disabilities (AUCD) Health Care Reform Summary Page
http://www.aucd.org/template/page.cfm?id=274

Read the law and track progress in Congress through the Library of Congress
http://thomas.loc.gov/cgi-bin/bdquery/z?d111:H.R.3590:

White House
http://www.whitehouse.gov/Issues/health-Care

 

bullet Improving Health and Wellness

Breast Health Care: Easy to Read, Easy to Understand (PDF) Brochure for individuals with intellectual and developmental disabilities about preventative care for breast health. Sponsored by the Susan G. Komen for the Cure Foundation and written by the National Office on Disability and Health, Chapel Hill, NC.

Healthy Living on their new Disability and Health information by the Centers for Disease Control and Prevention

Genetic Disorders:The National Institutes of Health offers consumer-friendly information on over 200 genetic disorders.

Getting Prescription Drugs - Click here to read more about the plans for prescription drugs in the District of Columbia.

Handbook for Women with Disabilities. Hesperian, a non-profit publisher of books for community-based health care to promote health world wide. This on line book is easy to read and understand for a wide audience.

Using Your Medicare Drug Coverage in 2007 -- If you are joining a Medicare drug plan for the first time or switched plans 2007 -- this fact sheet may help you for your first visit to the pharmacy this year!

The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities: What It Means to You

SENSAtional Ideas for Adults with Developmental Disabilities
Suggested activities, fun things to do that you can smell, see, touch, and hear!
by Janet Thomas, Jamie Hall and Toby Long

Stroke - How can you tell if someone is having a stroke?
Remember "STR" -
* S - Ask the person to SMILE;

* T - Ask the person to TALK -- to speak a simple sentence you can understand; and

* R - Ask the person to RAISE both arms.

Resource on Psychiatry
What Every Patient, Family, Friend and Caregiver Needs to Know about Psychiatry, 2nd edition, by Roukema. 2003.
This information is written for patients and caregivers, including family, friends, and professionals.
Check it out of the library or purchase at a bookstore.

 

bullet Getting the Supports You Need

Keeping It Real: How to Get the Supports You Need for the Life You Want
This was written primarily for students who are getting ready to transition from high school, but many adults will find it helpful as well.

 

bullet Information on Cerebral Palsy & Spina Bifida

Cerebral Palsy: A Complete Guide for Caregiving, 2nd edition
Alfred I. duPont Institute, Miller & Bachrack. 2006. Resource for caregivers, health professionals, & adolescents and adults with cerebral palsy. Check it out of the library or purchase at a bookstore.

Health Guide for Adults with Spina Bifida
The Spina Bifida Association of America has developed a new online manual, Health Guide for Adults Living with Spina Bifida (PDF).

 

 

 

DCHRP Georgetown University Center for Child and Human Development